Five-year-old Holly Nayler from Essex has CLN2 Batten disease, a rare and fatal form of childhood dementia that causes rapid neurological decline and frequent seizures. While an NHS-funded treatment cannot cure the condition, it has slowed the loss of her abilities. As access to the drug faces uncertainty, her family is calling for awareness and continued support.Five-year-old Holly Nayler from Essex has CLN2 Batten disease, a rare and fatal form of childhood dementia that causes rapid neurological decline and frequent seizures. While an NHS-funded treatment cannot cure the condition, it has slowed the loss of her abilities. As access to the drug faces uncertainty, her family is calling for awareness and continued support.
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